Tribal India Health Foundation & Association for Health Welfare in the Nilgiris
Sickle Cell Disease Center
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TIHF/GAH SCD Center Screening and Treatment Data Site
TIHF/GAH Sickle Cell Center Brochure
The mission of the Sickle Cell Disease Center, based at the Gudalur Adivasi Hospital, is to combine research with immediate clinical and community-based interventions to combat the spread of sickle-cell anemia in the Nilgiri district of Tamil Nadu and other parts of South India. The Center, along with its partner organizations, aims to implement and promote a holistic model of sickle-cell management which could be of use to other similarly affected communities in India and throughout the world.
Our patient-oriented services include:
· Center-based neonatal (<1 year) and adult (>1 year) screening for sickle-cell disease
· Issuing genetic health cards to patients screened for sickle-cell anemia
· Maintaining computerized and up-to-date genetic documentation of the Nilgiri area in collaboration with partner organizations
· Maintaining and distributing current diagnostic and treatment protocols for sickle-cell disease
· Field-based identification and monitoring of sickle-cell patients
· Immunization and sustained treatment of sickle-cell patients
· Provision of a sickle-cell disability fund to patients
· Prospective and retrospective genetic counseling (under construction)
· Field and Center-based sickle-cell education programs
Our research interests include:
· Investigating the efficacy of hydroxyurea and Pneumo-23 on sickle-cell patients of the target area
· Examining morbidity and mortality patterns among sickle-cell patients of the area
· Determining the frequency of the sickle gene among the tribal and non-tribal populations of the area
· Determining the frequency of the sickle gene among populations of Tamil Nadu
· Examining and monitoring the views and notions of sickle-cell anemia prevalent in the area
· Using genealogical methods to determine the role of consanguineous marriage in propagating the sickle gene in the area
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Please download the operations report of the TIHF/GAH Sickle Cell Disease Center below. To request an access code to view the report, please email us at scdcenter@tihf.org.
TIHF/GAH Sickle-Cell Center Operations Report (pdf)
If you are a health professional/researcher interested in supporting and/or collaborating with the GAH Sickle Cell Disease Center, please contact us at scdcenter@tihf.org.
For more information on sickle-cell disease, please visit the Sickle Cell Information Center.
Also visit www.ashwini.org/sicklecell.php for more information.